Blood Clots & Antiphospholipid Syndrome

12 Visible Evidence of a Body Gone Rogue

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The invisibility of chronic illness makes it incredibly frustrating. We look healthy, yet the pain under our skin can be excruciating. But is pain ever fully invisible? Painkillers mask the evidence of chronic pain somewhat, yet they often provide minimal relief. A body gone rogue is not easy to tame. And taming it requires a […]

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We take a glimpse into life with chronic illness as a young person in three short stories this week. Candid, insightful & humourous, we hope you enjoy them! | A Chronic Voice

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There are three new stories in this week’s roundup for you! A candid glimpse into living with chronic illness as a young person, and learning to accept your body. If you really stop to think about it, it’s a wondrous creation despite all the flaws. I hope these stories bring a chuckle or add some […]

Continue reading "#100WritingDays Roundup 2: A Candid Glimpse into Life with Chronic Illness as a Young Person" →

Metaphors for Chronic Illnesses | A Chronic Voice

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A thought-provoking excerpt from a book I was reading, which I find very applicable here: “Metaphor is the currency of knowledge. I have spent my life learning incredible amounts of disparate, disconnected, obscure, useless pieces of knowledge, and they have turned out to be, almost all of them, extremely useful. Why. Because there is no […]

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A Day in the Life: Why Social Functions Are So Exhausting For Us

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So your friend with a chronic illness has rejected your party invitation…again. Or they’ve included a list of T&Cs just in case they have to bail last minute. What’s up with that? Do they hate you or something? I booked a champagne brunch the other day for the boy’s birthday and thought, why not use […]

Continue reading "We Want to Have Fun Just Like You, But Here’s What it Takes" →

Why I Need to See 10 Different Doctors on a Regular Basis: Click to read or pin to save for later | www.achronicvoice.com

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Why the Need to See So Different Doctors? Autoimmune disorders are a complex beast; no two patients are the same, despite having a shared illness. There is no standard medication, like antibiotics to treat a common flu. Every patient’s custom combination of drugs comes from trial and error, and we often need to see different […]

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