My Responses to “A Day in the Life” Linkup (What Does 'Normal' Even Mean?) Featured Image

My Responses to the “Day in the Life” Linkup These responses are part of the ‘Day in the Life’ linkup, which aims to showcase people with different illnesses, and how they live their lives. The definition of ‘normal’ is always an intriguing topic to me, because there is no such thing. It could be a […]

Issue #166: The Worries as a Young Person Diagnosed with Chronic Illness & a Wheelchair Isn't Just a Mobility Tool, It is Also a Friend and More | Featured Image

Friday, 21 June 2019. Issue #166. In this issue: The worries as a young person when diagnosed with chronic illness. The ‘A Day in the Life’ Linkup aims to show how different life can be for us all, especially those with chronic illnesses or disabilities. The frustration and boredom of chronic pain and being confined […]

Issue #165: The Dread of Summer When You Can't Regulate Your Body Temperature & Craving That Elusive Thing Called Sleep | Featured Image

Friday, 14 June 2019. Issue #165. In this issue: The dread of summer when you can’t regulate your body temperature. When your supportive community turns hostile, because you’re in remission. The constant reminder from others about how prednisone makes you fat, when you’re just trying to stay alive. It would be nice to take a […]

Issue #163: Living in Silence with Chronic Illness for Fear of Being a Burden & Tips to Improve Your Quality of Life as a Person with Disabilities | A Chronic Voice | Featured Image

Friday, 31 May 2019. Issue #163. In this issue: Tips to improve your quality of life with some home and lifestyle changes, as a person with disabilities. Being hypersensitive to everything from light to vibration and temperature with Myalgic Encephalomyelitis. Living in silence with chronic illness for fear of being a burden, and how writing/blogging […]

"But That's Normal for Me" (Why I Mistook Dengue Fever for a Lupus Flare) | A Chronic Voice

The Sudden Beginnings of Unwellness I rarely take pain meds for something as ‘trivial’ as joint aches. But I popped one that day as I had work to do the next day, and I needed all the energy a good night of sleep could provide. Don’t get me wrong, these aches aren’t trivial at all, […]

April 2019 Prompts: Tiring, Educating, Receiving, Giving & Quieting | A Chronic Voice

CLICK HERE to submit your own entry, and to read about what others are up to as well! Tiring It’s been a tough year for me so far, especially in March. None of my monthly goals have been met, ironically due to ‘normal people’ sicknesses, i.e. bronchitis and dengue fever. I’ve mostly been bed bound, […]

Issue #151: Befriending Strangers with Chronic Illness Online Can be a Lifeline & Your Scars are Wisdom Made Flesh | A Chronic Voice

Friday, 01 March 2019. Issue #151. In this issue: Years of isolation can have a negative effect on your mental health, no matter how much you enjoy being alone. Basic manners we were taught growing up are missing on social media. When you have such a rare disease, speaking up about it matters that much […]

March 2019 Prompts: Failing, Succeeding, Pausing, Deciding & Thriving | A Chronic Voice

CLICK HERE to submit your own entry, and to read about what others are up to as well! Failing So, my plan for ‘honouring and reviving my youth’ in February was an epic fail :p Note to self: pushing past my regular boundaries do trigger fairly long setbacks, just in case I forget – which […]