As we know by now, living with a visible or invisible disability imposes many challenges on your daily life. Simple movements are not that simple and add up quickly. Many of us keep an ‘energy cheque book’, often filled with cancellations, notations and bright yellow highlights. Our energy allowance is meted out on a daily basis, and it gets old fast when you need to watch it with hawk-like attentiveness.
I started my blog three years ago, and one of the surprising benefits is the amount of knowledge I’ve learned from other bloggers. Whilst I’m no medical whiz nor do I fully grasp the personal pains of every individual, I now know about many other rare diseases apart from my own, interesting treatments, medications, and perspectives.
*Note: Whilst this post is kindly sponsored by Handicare Stairlifts, all opinions expressed in it are my own.
I have decided to compile a list of resources, tools and hacks for the home and everyday living here. After all, our houses are where many of us spend the most time in.
Table of Contents
1. Kitchen Tools: Rocking Knife, Food Dehydrator, Grabber
Blythe of “Sustainable Spoonie” wrote one of my favourite posts on energy saving gadgets for the kitchen. Equipments such as pressure cookers and food processors might be well known tools, but I never knew about food dehydrators, which you can use to easily make your own healthy snacks for the bad days (or even good ones!).
Then there’s the rocking knife, where you use both hands to cut food up with a rocking motion. This sounds like it’d take much of the pressure off the hands and wrists.
The grabber is a simple tool that you could treat as an extended arm. This reduces the need to bend down to pick things up, which can be agony for those with back or joint aches. The great thing about the grabber is that it can be used anywhere in your home, too! Check out Blythe’s post for more useful kitchen and cooking resources, and learn how she uses them in her own life.
2. Bathroom Tools: Shower Chair, Grab Rails
For some reason, I’ve never thought about purchasing a shower chair. There’s a reason they have them installed at hospitals. Sitting down can save you a lot of energy, especially for those who find showering more fatiguing than refreshing.
Grab rails are a fantastic fixture not only for those who suffer from chronic pain or dizziness, but also for the elderly, and anyone with a fall risk. Whilst I don’t need these (yet), I know how useful it is to have something solid to hold onto for support. I used to ask my partner to transform his arms into my personal handrails whenever I was aching horribly, so I could pull myself up with more ease. Do you do this, too? 😉
3. Digital Tools: Voice Assistants, Alexa, Google Home
Working on a computer can be limiting and difficult for those with disabilities or chronic pain. Here’s where voice assistants can be amazing helpers. You can dictate your emails, browse the internet, and even set the position of your mouse on-screen.
The main benefit of using your voice instead of your mouse or keyboard, is that it lifts ergonomical restrictions. You are now free to sit in the most comfortable position for you, and move your body more. This is a great tool for healthy people too, with sitting and sedentariness as big factors of disease in modern society.
This isn’t limited to your desktop either. You can use voice assistants on your phones and other digital devices to make a phone call, send text or WhatsApp messages, and set reminders (for e.g., “Remind me to call Doctor X at 10a.m. tomorrow”).
I’ve also read many impressive things about how people use the Alexa to improve their lives at home. There is no limit to imagination, but here are 15 great ways to set it up for home use, compiled on Julie’s blog, “Counting My Spoons”. From turning the lights on and off, to an intercom, to entertainment! It sure does sound like a handy little ‘companion’ and personal home assistant.
Or if you prefer using Google Home instead, this guide by “My Hope Whispers” is a good place to start. I like how she uses it to unlock the door for her kids when they come home from school. And how it ‘remembers’ things such as where she’s placed her keys, or last took her medications.
4. Bedroom Tools: Bed Tray, Kindle
A bed tray sounds like something useful for when you’re bedbound. There is a variety of them out there, so hopefully you can find one to suit your needs. If you need to work from bed, there are trays that come with holders for your laptop, ipad and other devices. If storage is a concern, there are foldable ones. There are also those with closed compartments so you can keep your ‘desk’ organised, and even ones with lefties in mind!
I included the Kindle on this list as many of those who live with chronic pain also suffer from painsomnia. A Kindle with backlighting is great for nights when you’re up alone, and don’t want to disturb your sleeping partner.
A good book can be a wonderful distraction and soothing companion, as they immerse you in a different world. Kindles are lightweight so they don’t hurt your wrists, and sits in your palm quite nicely. In fact, I recently downloaded a bulky book I already owned to read on my Kindle instead. This increased the pleasure and speed of reading, as it took away the constant need to reposition myself or the book in order to read it properly.
5. Bibs & Bobs, and the Importance of Organisation
I know I sound like an aunty, but I love going to Daiso (the dollar store here – what’s it called in your country?). Everything costs $2 flat there, and the quality of items are actually pretty good! Space is limited, so I and many people in Singapore live in small apartments. Here’s a list of household items that I’ve bought, love and still use: a wall clamp for brooms (so it’s elevated off the ground), lots of fluffy face towels (yes I like to feel the fluffiness after a shower), many different sized boxes for various storage purposes (bird seeds, medical documents, condiments), pretty ceramic bowls to throw random things and jewellery into, etc.
If you take lots of medications every day, you’d know the value of organisation. I use these stackable holders I bought from Daiso to separate my morning and night medications. This helps to reduce the mental load of differentiation, every time I need to refill my pill boxes, which is a lifelong task. Ikea also sells these large compartment storage boxes that are great for keeping my wardrobe and yet more medications organised.
Apart from the comfort a nice and neat home brings, keeping things in their proper places is vital for those who suffer from brain fog. In cases of an emergency, caregivers or acquaintances can locate and retrieve important items for you quickly as well.
6. Staircase Problems: Basket, Stairlift
Whilst I’ve never lived in a house with multiple stories, I’ve learned some interesting hacks from others nonetheless! For example, Natalie of “The Spoonie Mummy” keeps a basket by the staircase at home, which she dumps items into that she wants taken up or down. This saves her from the need to make several trips, which can escalate the pain from her Rheumatoid Arthritis.
Another option, especially if climbing staircases are a huge daily problem for you or a family member, is to consider getting a stairlift fitted. The rails on which these chairs operate on come either straight or curved, and can be customised to fit your home. This is great if you’re looking for a long-term solution. There are many companies that offer financing options or refurbished stairlifts as well.
These are just a few things you can do to improve the quality of your life at home. Many of these resources fascinated me when I first discovered them for myself. I hope that something on this list is of use to you. I’d also love to hear what your personal favourite home hacks and tools are as well, in the comments section below!
This list is just a rough guide, and nothing in this review should be taken as medical advice. Always be sure to check with your doctor before you start on any new treatment or protocol.
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For More Tips:
- 16 Products to Use When Painsomnia Keeps You Up at Night (themighty.com): http://bit.ly/2ILWhUX